|
Written by Modmadmike
|
|
Sunday, 21 October 2007 |
|
Hello, my name is mike, and i was diagnosed with LDS in January 2007. For the time before then i was miss diagnosed with Spritzen Goldberg syndrome. I was born with a cleft pallet, and club feet, which thankfully are
both fixed now. I had pectus ex cavatum,but that was repaired with a
nus bar this year along with my enlarged aorta.I was about four-foot-seven due to scoliosis at a 130' curve. I now am almost 5 feet tall. I have two steel rods screwed into each vertebrae on either side of my spine.
Right now i am 15 (turning 16 in July) in high school as a freshman in the second semester. School is a bit hard due to the fact that i am absent so many days. My hobby is computers, building soldering kits, and sometimes carpentry. I like to bike ride on my mountain bike, but i can get tired out due to the fact that lds is a connective tissue disorder, and muscle just so happens to be a type of connective tissue.
I Just filled out for Make-a-wish about a month ago and am about 3/4 through the approval process. I chose to go on a trip with my family to get away from the house and to have some fun other than computers. I decided to go some where very very far away from where i live... Japan! Me and my brother had always been into anime, manga, J-pop/J-rock, the japanese lifestyle, and electroncs thus I felt it was the ideal place to go. If all goes well then my family will have a fun and relaxing vacation.
My favorite hobby is computers, carpentry, and electronics.
Contact me with skype "the Button will display my stats"- i have a web-cam and mic setup.
|
|
Last Updated ( Wednesday, 02 April 2008 )
|
